Millions of young people could miss out on safe and effective treatments because so few take part in medical research, experts warn.
Analysis of National Institute for Health and Care Research (NIHR) data shows 18–24-year-olds make up 8% of England’s population but only 4.4% of research participants. This means new therapies are often tested mainly on older adults, raising concerns they may be less effective or unsuitable for younger patients.
“Young people face unique health challenges, yet their voices are missing from research,” said Kirsty Blenkins of the Association for Young People’s Health. Barriers include limited awareness, lack of outreach, and concerns about confidentiality.
Dr Esther Mukuka from the NIHR said involving Gen Z in studies is vital for designing treatments that reflect their needs. The NIHR has launched a UK-wide volunteer registry to make participation easier, including for healthy people.
Experts say greater youth participation is essential to ensure that future treatments and NHS care work effectively for everyone.
